It’s been an incredibly busy year, at work and at home, in professional circles and in the wider public, political arena. As a keen advocate of blogging as a key component of scholarly communications and the research life cycle, I’ve regretted being too busy (or too exhausted) to blog more frequently. As the academic term draws to an end and we approach the Christmas holidays, I feel I have a lot of engagement and dissemination work I have to catch up with. This post is one attempt of doing so.
I am very pleased to share that this year I joined the Centre for Human-Computer Interaction Design (HCID) at City, University of London. The Centre has a strong track record of research into accessible and interactive technologies and methods for people with disabilities and to support creativity in mental health (particularly for dementia care).
My own recent collaborative research has focused on Graphic Medicine, i.e the study, design and delivery of creative, therapeutic and educational uses of graphic narratives (comics, cartoons) for mental health care provision and public engagement.
I am very pleased that my application to obtain internal funding from the School to support activities and strategies to develop impact from HCID’s previous and ongoing research on these areas was successful. This is a modest internal award to support strategies to enhance the ‘public impact’ of recent academic outputs (2013-2016). Our proposal seeks to connect the dots between previous and ongoing work on dementia care and graphic medicine.
We will be organising knowledge exchange workshops with the participation of HCID researchers, mental health professionals, comics scholars and comics artists. The workshops will focus on the exploration, discussion, reuse and adaptation into comics of the dementia care best practice data collected and made available by the Care’N’Share project, which crowdsourced, curated and aggreagated a significant dataset of case studies of best practices for dementia care (Zachos et al, 2013; Maiden et al, 2016).
Our ongoing study on ‘Graphic Medicine’ as a Mental Health Information Resource engaged with members of the creative industries involved in the creation and publishing of comic books with mental health topics and mental health care students and professionals in partnership with the Tavistock and Portman NHS Foundation Trust (Priego & Farthing 2016, Farthing & Priego, 2016b). The research shows the need of further knowledge exchange between academics, those creating graphic medicine materials, mental health care practitioners and members of the public.
Our proposal seeks to address and respond to these findings through graphic medicine workshops and the creation of deliverables in comics (print and online) form. Initially, we will host comics workshops at City, University of London between late February and April 2017. We will focus primarly in working together to explore and discuss the Care’N’Share dataset and the different possibilities in which the data can be adapted into comics form, leading to the creation, distribution and user testing of a professional comics publication, under the artistic direction of Dr Simon Grennan. We will be sending out public and personalised invitations to participate in the workshops and to provide feedback in early 2017.
The end users will be those interested in dementia care (carers, mental health professionals, patients, relatives, members of the public interested in comics and/or mental health). They will benefit by gaining knowledge about the best practices for dementia care collected and the affordances of graphic medicine to make these practices communicated more widely and distributed in an accessible form.
Carers and people with dementia, care homes and health trusts are logical beneficiaries of enhanced impact of dementia care research, but so is society at large: it is estimated 750,000 people suffer from dementia in the UK alone. It is predicted that by 2051 dementia will affect “a third of the population either as a sufferer, relative or carer” (Zachos et al, 2013; Wimo and Prince, 2010).
Research shows that comics have the potential to have a positive impact on the health and quality of life of people who engage in comics creation (for example by participating in workshops) or reading (publications), contributing to transform attitudes, awareness and behaviour around illness and contributing to create new opportunities for empowerment and more positive behaviour (Cardiff University 2014).
Ours is a small initiative that seeks to make a contribution to enhancing the public impact of the best practice data resulting from research by exploring and embracing the communicative affordances of graphic storytelling in general and graphic medicine in specific. We hope that by enabling stronger links between academia, dementia care practice and comics scholars and practitioners, we will be taking steps in the right direction.
Apart from HCID staff, key partners whose support was essential for this proposal are Professor Neil Maiden (Cass Business School, City, University of London), Dr Simon Grennan, Anthony Farthing from the Tavistock and Portman NHS Foundation Trust, Dr Damon Herd from the Dundee Comics Creative Space and Dr Peter Wilkins and the Psychiatric Nursing Programme at Douglas College in Vancouver, Canada. Our gratitude to all of them. We cannot wait to start working together.
Cardiff University (2014). Improving HIV/AIDS education and support in KwaZulu-Natal through comics drawing. REF2014 Impact Case Study. Available from http://impact.ref.ac.uk/CaseStudies/CaseStudy.aspx?Id=3582. Accessed: 14 December 2016.
Zachos, K., Maiden, N., Pitts, K., Jones, S., Turner, I., Rose, M., Pudney, K. & MacManus, J. (2013). A software app to support creativity in dementia care. Paper presented at the 9th ACM Conference on Creativity & Cognition, 17-06-2013 – 20-06-2013, Sydney, Australia. http://openaccess.city.ac.uk/3837/ .
Maiden, N., Schubmann, M., McHugh, M., Lai, A.Y. & Sulley, R. (2016). Evaluating the Impact of a New Interactive Digital Solution for Collecting Care Quality In-formation for Residential Homes. Paper presented at the 30th British Human Computer Interaction Conference, 11-15 Jul 2016, Bournemouth, UK. http://openaccess.city.ac.uk/15127/.
Priego, E. & Farthing, A. (2016). ‘Graphic Medicine’ as a Mental Health Information Resource: Insights from Comics Producers. The Comics Grid: Journal of Comics Scholarship, 6, doi: 10.16995/cg.74 http://openaccess.city.ac.uk/13441/ .This research was presented at the Graphic Medicine Conference 2016, 7-9 July 2016, University of Dundee, UK.
Farthing, A. & Priego, E. (2016). Data from ‘Graphic Medicine’ as a Mental Health Information Resource: Insights from Comics Producers. Journal of Open Health Data, 4(1), e3. doi: 10.5334/ohd.25. http://openaccess.city.ac.uk/15251/ .
Wimo A. & Prince M., 2010, ‘World Alzheimer Report 2010: The Global Economic impact of Dementia. Available from http://www.alz.co.uk/research/worldreport. Accessed: 14 December 2016.